Tomorrow we head to the cardiologist to see how Abe's heart is holding up. He has been more sleepy, sleeping more often through the day but more active when he is awake. He kicks like crazy, grabs and holds toys, jibber jabbers, smiles, and has started a mild belly laugh. He rolled over from his side to his belly twice yesterday, progress! We also have a new appointment with the geneticist Sept. 25. Will have to do more research to get prepared so we can ask for the tests we want, as the geneticist refused us an appointment twice even after formal referrals from the cardiologist and pediatrician. I believe the goal will be to test for metabolic disorders i.e. Barth's, 3-Methylgloc., congenital neutropenia, Kostmann's, etc. And then we see the hematologist October 2 which will be interesting too. In the past, in the hospital, the hematologist talked about studying Abram's bone marrow for answers so we are excited to get to the bottom of all of what's going on!
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