We are finally home!

It's been a challenging couple of days getting home with new routines after spending two weeks with Abram at Children's Mercy. Abram received countless tests to rule out/in metabolic, genetic, immune deficiency, and blood disorders. Although some tests are still outstanding, the doctors are leaning towards the cause of our son's dilated cardiomyopathy as a virus that attacked his heart, the enterovirus matter of fact. What I have learned is that this virus is very common, second to the common cold virus (rhino virus), usually causes meningitis in addition to cardiomyopathy in SOME babies, but somehow Abram was not affected with meningitis. Other babies can fight off the virus completely. In Abram's case, it's likely his immunity was jeopardized due to his decreased nutrition by acid reflux. Apparently there is no rhyme or reason that some babies are affected and others are not, unless there is another underlying condition/syndrome. We were told there was a possibility of Abram having a syndrome called Barth's Syndrome, however, several of the tests for this tested negatively. To be sure that he does not have this would take a genetic test and it seems to me if I remember correctly the geneticist that was working on Abram's case did not think it would be helpful to run this test since all other tests pointed away from this. THANK GOD. Learning about this syndrome scared both Bryan and I, and I know for me it still is in the back of my mind looming about. So, I guess we only think we know what caused Abe's heart problem. Not knowing certainly weighs heavily on me.
On the other hand, we are finally home. Despite constantly keeping notes of when we filled the pump to feed Abram, to when we last gave him his many medications, at least we can say we are doing it all at home.